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Thanks for the kind wishes.
Please understand I am 100% OK in the head department...it boils down to realising I have today to enjoy and to worry about a condition ,death, wherein I will have no comprehension of anything or any awareness whatsoever ...or pain...it cant hurt when you are dead...is just silly.
So given I have a nice life today I am not going to degrade that by worrying about what death will be like.
As to the blood tests, trips to specialists etc I have determined to treat each as a little adventure...further I am sure if the pain gets bad there will be great drugs to manage it...there is only a down side if you allow it to cloud your reasoning.
Think about all you have now not what it will be like when you will have no feeling or awareness...sooner or later we all lose all we control in life...it is hardley fresh news.
Specialist Thursday so will get a plan to fight the thing...It is aggressive but I wont let that phase me...I have 4 hours left today and I am off to make the most of every minute.
Alex
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